thank all for everyone praying for Trent. His mom updated his site today and I thought I would share. Please continue to pray for him.
CaringBridge. Free Websites That Support And Connect Loved Ones During Critical Illness.
Trent has ate and drank very little this past few days. His body is slowly shutting down, the first sign being no bowel movements. He is not hungry, he is not thirsty although dehydrated; hence the nurse having hard problems getting blood from his veins. I had suggested a PICC ine for fluids and meds and this is what I was told and also learned from experience plus nursing school:
His body does not need the food or fluids when it is shutting down; we don't want to start IV fluids because this will mess up the peaceful natural process of dying. While this is happening, there are certain hormones in his body that are being released to make him comfortable. This is the same reason he does not need oxygen...when the body goes into a hypoxic state (low oxygen levels), it's almost like a natural high, since he is mostly sleeping and his organs are shutting down, they do not need extra oxygen, it will interrupt the normal peaceful dying process.
His nurse is coming over to place an NG tube, a naso-gastric tube that goes up thru his nose and down by his stomach; I will be gving him only the meds he absolutely needs to keep him comfortable...the decadron and Keppra to inhibit the brain from swelling and prevent seizures and headaches. Of course, his pain meds also. They have changed over his meds to liquid in order to use a syringe to administer through the NG tube.
This is so hard for me, but comfort and being pain-free is the only thing he needs at this point. They told me to talk to him, let him know that everything is okay, that I'm ok (he always worries about his Mom) and that it's okay to let go of his body and start his journey to heaven. This is what I will be doing all weekend; I have many numbers to call in case we do need anything. Right now, Trent needs his Mommy right next to him, to explain to him abut what is happening, and that it's okay to let go and stop fighting. All of my best friends are a phone call away. What I need now is precious quiet time with my little boy, alone time so I can explain what is going on and keep on einforcing the facts typed above. All of my friends understand what I am talking about.
We are on our next step, we want it to be peaceful and pain-free and happy. I'm going to lay nest to him, sing, talk about stories and read some books, one of which is called The Next Place. ai will update after the nurse leaves our house.
This is the hardest part of comfort cares and measures, the toughest part for me also, because I still want someone to DO something; but it would be selfish on my part to try to keep him here when he is ready to go.
We've done some amazing things the last year, parasailing, deep sea fishing, Disney, camping trips, the farm, the helicopter ride, Wild hockey games, and many more. We don't have any regrets if we don't dig too deep. Thank you all for being on our side, physically, emotionally, and in thoughts and prayers.
I will update as soon as his nurse leaves this evening. Remember, his body is starting this incredible journey to heaven.
Update on Trent
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