Well, I feel like I was hit by a truck. Tommy had the cath to check the pressures in his heart and lungs. Healthy lungs are very important to his repair because the surgeon will reroute part of his blood flow to his lungs to take some of the strain off of his heart. As it turns out, because Tommy was born preemie, we found out today that on top of ALL the other issues, he has lung disease. He was born with it, and until we did the cath, we had no way of knowing.

This puts us in a very bad spot. He is now concidered a bad candidate for surgery, and cannot at this time be repaired. He must go on oxygen long term. We are going to continue to monitor him for about 3 months. At that time, we will do another cath and see if the oxygen is healing his lungs. If yes, then we can repair, if no, then our only choice is to give him a bigger shunt to help with his blood flow in the heart and keep him on oxygen. This only buys him time and is by no means a fix for his defect. We will get 6-12 more months before we do another cath with the same options. The lungs stop growing new tissue around 5 years old, so we can just keep repeating until we have no time left.

There is no way to know if he will ever heal. This is our only option. Right now, he is still in the hospital because of the sheer amount of drugs in his system. He is still not fully awake. He is on a ventilator, but he is nearly weaned off of the pressure, and will just be on oxygen in a couple of hours. He can come home tomorrow after his oxygen is delivered to our house.

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There are more than 40 different types of congenital heart defects. Little is known about the cause of most of them. There is no known prevention or cure for any of them.
My Blog:Musings of a Heart Family

Please know that Tommy and your family are in my prayers!!!

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If you need to get in touch with me, my email is teach1107910@yahoo.com.

Oh Rene, I am sorry you didn't get better news. I will continue to pray for Tommy, and you. ((BIG HUGS))

I wish the news had been better for you, too. We can never guess what God's plan for us will be. I will continue to lift Tommy and your family in prayer. Give them all hugs and take care of yourself, too!

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Homeschooling Mom to Daniel (12 Years), Andrew (8 Years), Stephen (6 Years) and Emily (3 Years)

*************Visit AyeOhKay's Blog - "Frugal & Fun"**************

You and your family are in my prayers.

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Oh my word. I am sharing your tears. Poor thing and poor you. I can't imagine having to see your baby like this and to face this long road ahead.

Prayers are being lifted up for you and (HUGS) sent

Please update us when you know more and thank you for sharing

((HUGS))

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I'm so sorry that you got bad news. I will keep little Tommy & your family in my prayers.

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Erin, aka Quentinsmommy, mom to Quentin (1/03) and Ian (1/06)

I am so sorry, I have a candle lit on my alter for Tommy and your family& prayers are sent to the Goddess, I know she is watching and protecting your baby, She is a mother too, she knows your pain.
This candle will stay lit and send positive healing energys to Tommy and you.
I know that I am not Christian, but I would like to try to help Tommy,If its OK with you, I can set a healing spell into motion. But I can NOT do it without you saying it is OK.
Brightest Blessings to All.

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http://mommysavers.com/boards/journa...wjournal&j=110

http://tinktime-tink.blogspot.com/

If you tell your secrets to the wind... Don't be mad if it tell's the trees.

I am so sorry! I will keep you and Tommy in my thoughts and prayers!

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~Happiness is a large family~

I'm so sorry to hear this. I will keep praying for your little one. God does hear these prayers sweetie. Big hugs.