Do you actively seek out other Parents of SN children?

desertmom · **Do you actively seek out other Parents of SN children?**

If you haven't, try to do so - it really is a positive! Even if you can't get out of the house, just communicating by phone or via email is wonderful. Of course we "talk" here, but meeting face-to-face, while a challenge, is wonderful. (Tommysmommy, have them come to you!)

We met a mom yesterday through an area Aspergers group. I only recently found this group. Another reason to reach out - you learn about resources!

It was so nice to talk to another mom who experienced the same annoyances, challenges and positives that I've experienced. The two boys were a year apart but became immediate friends. It was like instant acceptance, which my son doesn't usually get.

Try to make contact with one other family like yours within the next week. It really will help change your perspective. After talking with this mother yesterday, I was grateful for the school my son attends, but also gained ideas to make his schooling even better.

lorie · 07-17-2007, 11:03 PM

Great advice!

I find other parents who are in my similiar situation to be priceless. Their experiences and insights are usually so "right on the money". I have learned from other women just by listening to them.

I also find solice in knowing that "I'm not alone" and "It's going to be ok".

THanks for a great post, desertmom!

periwinkle · 07-17-2007, 11:05 PM

how does one go about finding support groups or even playgroups for SN kids/parents?

TommysMommy · 07-17-2007, 11:41 PM

LOL, desertmom! I HAVE done this. I not only post here, but I am on a yahoo group for trachs, a message/forum board for trachs, a listserv for heart defects AND I keep a carepage and a blog! When Tommy had his most recent heart surgery, one of the heart mommies that I have met online drove down from Myrtle Beach to sit with me. Her daughter had been through the same three stage surgeries at the same hospital by the same surgeon. It was very nice to have someone there that knew what I was going through.

periwinkle, I would start with your local early intervention services. Since your child is still under 3, you should qualify for assistance with therapies and support. I am such a huge advocate on support and special needs. My only drawback is first of all, I am homebound with Tommy's condition, and secondly, I don't know how to drive, and now it's going to be darn near impossible to learn since I can't leave him to go learn!

desertmom · 07-17-2007, 11:59 PM

Also, Periwinkle, google symptoms and put "networking" or look for local resources within your state and city. I truly felt alone in the Aspie situation, and then found that my zip code has a LARGE # of cases. Isn't that odd? Yet, when meeting the parents, found we all felt alone.

Also, ask your pediatrician and any therapists. While they won't divulge patient info, if you have them give your name, email and # to any other interested parents, they will, usually. I made some friends that way, too.

Also, feel free to post here. Perhaps we can help each other find groups and resources. I know there are some who are more skilled in doing detective work than others. It's worth a shot!

Tommy's mommy - wish you lived near me! Call your hospital and speak w/a case worker - they are usually aware of state programs to allow respite care. You do need to get out. Have dh help you learn to drive while someone comes over to watch the kids. I know it's easier said than done, but each phone call is a baby step toward getting there.