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Old 07-19-2007, 11:48 AM   #21
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MegNAbbysMom
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You and your sweet baby girl are in my prayers. ((hugs))
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Old 07-19-2007, 12:48 PM   #22
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mbell0817 I sent you a pm thanks Robin
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Old 07-19-2007, 05:03 PM   #23
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My thoughts and prayers are with you. God does not make mistakes...but sometimes I wonder bout His humor. I remain faithful and pray for your family and for your little one.
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Old 07-20-2007, 04:44 PM   #24
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I will keep your family in my prayers. Sometimes the ultrasounds are not exactly what they think they are or they problems correct or partially correct themselves in the development process. I also firmly believe in the power of prayer and that sometimes God intervenes during the development process. We are all praying for you.

What you decide about where to deliver is up to you. If it were me, I would want the specialist medical team available - just in case.
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Old 07-20-2007, 06:25 PM   #25
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prayers already lifted here in Ga, and will continue to be lifted. Please keep us posted.
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Old 07-21-2007, 10:48 PM   #26
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Michele,

Keeping looking up. If It makes you feel any better, I just gave birth to my third child on June 28. While I was pregnant they found out that he had a two vessel cord, and club feet. A two vessel cord usually means some sort of abnormality, heart, kidneys, spine, brain. Well our options at the time were to do an amnio and when given that option we chose not to because the high risk of miscarrying the baby and both of my other children knew and we already were blessed with a special needs son. My thoughts were "There must be a reason". We chose to leave Keegan be and weigh out the options. I did deliver him in an emergency C Section, we were very prepared that he was going to NICU......he didn't he made it to the nursery. He does have BOTH clubfeet, and so far he is only showing mild fluid on his kidneys, but at this point and time that is not a major concern and we are following up with a specialist. Stay positive, sometimes they make things out to be worse than they are! Lets hope and I will contiue to pray for you and your family.
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Old 07-22-2007, 06:41 PM   #27
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I know things sound bad. And it's tormenting to go through. I do know first hand that dr.'s
can be so wrong. They said my dad would be a vegetable and he's a miracle!
You see God holds the upper hand. He will give you the strength either way.
I met many special needs children and most of them are so joyful and loving.
I've even seen single moms doing it alone and doing a fabulous job trying to make the child's life as normal and happy as they can.
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Old 07-24-2007, 02:47 AM   #28
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Quote:
Originally Posted by Shay
Michele,

Keeping looking up. If It makes you feel any better, I just gave birth to my third child on June 28. While I was pregnant they found out that he had a two vessel cord, and club feet. A two vessel cord usually means some sort of abnormality, heart, kidneys, spine, brain. Well our options at the time were to do an amnio and when given that option we chose not to because the high risk of miscarrying the baby and both of my other children knew and we already were blessed with a special needs son. My thoughts were "There must be a reason". We chose to leave Keegan be and weigh out the options. I did deliver him in an emergency C Section, we were very prepared that he was going to NICU......he didn't he made it to the nursery. He does have BOTH clubfeet, and so far he is only showing mild fluid on his kidneys, but at this point and time that is not a major concern and we are following up with a specialist. Stay positive, sometimes they make things out to be worse than they are! Lets hope and I will contiue to pray for you and your family.
In regards to the clubfeet, how soon after birth did they start casting? I just met with an orthopedic surgeon, and he says that there is no rush...that he'd rather wait until she is out of the NICU, so that he can cast in his office when she is more stable.

Thanks for all the kind words and encouragement, mommies! I think the thing I am finally willing to admit is that there's very little we can know until she is born. The specialists in town all think that I would be able to deliver here with no problems (we have a level 3 NICU that is supposed to be very good). I don't think women should have to make decisions like these when they're pregnant! But God tends to open and close doors when we need him to, so we just have to wait and see.

Thanks again!
Michele
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Old 07-25-2007, 12:14 AM   #29
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Have they given you any indication of how severe the omphalocele is? I would think that would be the main consideration when the baby is first born. But there are so many different degrees it can be. Good luck.
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Old 07-26-2007, 06:56 PM   #30
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Michele,

Sorry for the delay in post. Keegan's cast were put on 18 hours after birth. Here they tell me that the sooner the better. It is basically because infants are more pliable. With serial casting they move the leg/foot a little each time. Now with her being in NICU, I can see them waiting until almost discharge to cast. We get the cast changed on a weekly basis.
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