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Old 04-17-2008, 08:04 AM   #1
Default Dan Doctor Testing
saversue
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We have an appointment with a DAN doctor next January and I know what the evaluation cost is but the fees can range in cost.

They did not tell me then what the range was and I know it's high. I plan on calling back and asking but I was wondering if anyone else had the testing done. If so, how much did it cost?

My almost 6ds has sensory issues and may have some other unlabeled issues. He has done extremely well with the gluten free/casein free diet so we want to take it one step further and see what else could be affecting him.

But, if anyone can give me any information on cost of testing, I would really, really appreciate it.
Thanks,
Sue
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Old 04-17-2008, 10:19 AM   #2
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desertmom
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I've heard the term, but can't remember: what is a DAN doctor?

We used a Dev. Ped., who charged $300 per visit, but insurance picked up all but my copay, which is currently $50 (up from $20!).
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Old 04-17-2008, 02:44 PM   #3
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saversue
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DAN is short for DEFEAT AUTISM NOW.
They are doctors(most with medical degrees) that follow integrative approaches to healing autism (or in our case, sensory issues).

They are big is dietary changes and adding supplements to the diet. They also do chelation (binding chemicals sent through the child's boy to eradicate heavy metals) although we do not wish to pursue that.

Sue
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Old 04-17-2008, 09:02 PM   #4
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My radar is tingling....not in a positive way. I'm going to ask on my autism board and see what feedback I get.

Also, that is the approach we took the first time around - some dietary changes (not overly strict, though), and about $60-$100 per month in supplements. Never saw any difference. From research done, supplements don't really do much unless there is a deficiency, which blood tests (ours were about $900, not covered by insurance) can verify.
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Old 04-18-2008, 12:59 PM   #5
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saversue
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If you hear anything please let me know.


I would not be pursing this approach except we have had loads of luck with going gf/cf and adding supplements. He improved tons when we changed his diet (3 families put their kids on the diet after they saw the difference in my ds but it did not work for any of them). Then, I put him on better vitamins, added calcium, digestive enzyme and a omega vitamin and he improved so much.

He is also on Threelac for yeast. Everytime he goes off threelac he gets a yeast infeciton. My ped doesn't really agree with me (which is very typical).

So, my main reasons for going is to get the testing done and see if he has any difficiencies and to get some yeast testing/resolution.

I have read tons about the DAN approach and I understand what my stance is going in to see the dr. I know I don't want to pursue things like chelation.

But, any information you could pass along is always helpful.
Thanks,
Sue
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Old 04-18-2008, 02:14 PM   #6
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Just a thought, if your ds is responding well to GFCF diet what about consulting a ENT or allergist or D.O. that specializes in gluten issues. They can even do the test that show if it is the gluten that is the main issue. My DF had her daughter see a DAN doctor and never saw any improvement. They tried for 6 months and about 40,000 dollars into it her his said no more.

I know most don't like her but the blonde on the view Hasselback has to be on a GFCF diet and has some info on what tests to ask for.
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