Welcome to Mommysavers Forums.
Go Back  
Special Needs Families with special needs children


Reply
 
Thread Tools Display Modes

Old 10-04-2006, 03:44 PM   #1
Angry Venting about some postings  
CelticFaerie
Senior Mommysavers Member
 
CelticFaerie's Avatar
 
Last Online: 05-01-2007 06:49 PM
Join Date: Sep 2006
Posts: 154
iTrader: (0)
I have chosen here to release my frustration. Yet, I may post this on another room. I joined mommysavers after being on another message board site. People tended to be more active on this one. I am new on mommysavers and I am so happy to have a special needs board.
As some of you know my ds is on the autism spectrum. So, school and every day activities can be challenging this is my complaint.

It seems like some members are trying to go for mother of the year. They try to out "mommy each other" like there is a trophy awaiting them. The act like if you are sending your child to a public school instead of homeschooling, you are sending them to the executioner. I homeschooled for a year not by choice. There are some good points. But not all homeschooled kids are ahead and many will not be able to pass the test to get a high school diploma.

I did not go to "mommy and me " classes. My ds was so scared of people that he would have screamed the whole time.
I do feed my child sugar cereals and allow him to have candy. He does not react any different when he has it. Frankly, If he puts a food in his mouth and swallows it. It is a victory and I stock up on it.

There are so may clothes that make him itch. That if an item of clothing does not make him fidget or scratch and stays on his body. I buy one in every color. Thank Goodness for Gap and old Navy tagless tees! Yes I have bought gymboree things for when he was younger. But it wasn't to prove that I was a good mom. It was because he couldn't escape their overalls.

I do not own a mini van ( no offense to those who do ) But, I can't help but cringe when I read about moms complaining about car pooling. I would love to have a van full of kids to pick up after a game. Unfortunately my son's motor skills prevent him from playing.Even though he wishes he could keep up and play.

I wish I had another present to buy for a child's birthday. Because he is in a special needs class. All the kids that have parties in his class just invite each other. I wish he would get an invitation, just because he had a true friend that didn't judge him.

I wish my husband didn't have to work two jobs. But one of us has to be available for appts. meetings and the occasional bad day.
I wish I had household tips for you. Right now the laundry is going, with a pile to be folded on the floor. The dishes from this morning are in the sink because my dd forgot to unload the dishwasher and I am tired of doing her chores.
I am not a perfect mom, I am just doing my best, I would give my life for my kids and I couldn't live without them. My life is hectic and I know you all can relate. Sometime I wish I could take the "problems" moms of " normal" kids have, and show them what's it like to be us.
But then you would have to take our kids and I know no one here would give them up. I guess I will have to settle with not being so perfect.
Thanks for letting me vent,
Mitz
CelticFaerie is offline   Reply With Quote
Old 10-04-2006, 04:05 PM   #2
Default  
Cheesecake Lady
Mommysavers Goddess
 
Cheesecake Lady's Avatar
 
Last Online: 11-17-2009 10:04 AM
Join Date: Jul 2006
Location: Southern CA
Posts: 2,084
iTrader: (0)
Quote:
Originally Posted by CelticFaerie
I am not a perfect mom, I am just doing my best, I would give my life for my kids and I couldn't live without them. My life is hectic and I know you all can relate. Sometime I wish I could take the "problems" moms of " normal" kids have, and show them what's it like to be us.
But then you would have to take our kids and I know no one here would give them up. I guess I will have to settle with not being so perfect.
Thanks for letting me vent,
Mitz
Vent away! I don't know of any maom or any family that is "perfect" regardless to if they have a special needs child or not. Your life has adapted to certain aspects and you deal with it the best you can - don't let other families put you down for the sacrafices you have made! I know your dreams have been altered, but you kids are very lucky to have two parents that will bend over backward for them!!!!
__________________
60 Miles
3 Days
1 Reason
Everyone Deserves a Lifetime
Breast Cancer 3-day Walk
Cheesecake Lady is offline   Reply With Quote
Old 10-04-2006, 04:23 PM   #3
Default  
Happymom
Mommysavers Addict
 
Happymom's Avatar
 
Last Online: Today 08:06 AM
Join Date: Jul 2006
Location: Minnesota
Posts: 22,889
iTrader: (0)
Latest Blog Entry: Yuck!!!
Blog Entries: 9
I feel the way you do sometimes too!!! I would never homeschool (I think my kids are getting a great education), I (gasp) work full time away from home and am happy with it, my kids pretty much eat what they want to (and are very healthy too!),I do not buy namebrand clothing, I was so excited that my introverted 7 yr old finally got invited to a b day party!!!!

I am not sure what actually constitues special needs. My children and grand child have what I consider some special needs, but I know it is nothing compared to what you have to deal with daily.

Big hugs to you!!! We are all great mommies who want what is best for OUR own family!!!
__________________
~Happiness is a large family~

Everyone must be quick to hear, slow to speak and slow to anger. James 1:19

Do you not know that in a race all the runners run, but only one gets the prize? Run in such a way as to get the prize. 1 Corinthians 9:24
Happymom is offline   Reply With Quote
Old 10-04-2006, 04:28 PM   #4
Default  
ThreeInAZ
Senior Mommysavers Member
 
ThreeInAZ's Avatar
 
Last Online: 12-11-2006 10:23 PM
Join Date: Sep 2006
Location: Arizona
Posts: 159
iTrader: (0)
I so understand how you are feeling, I don't own a mini van, we own a little very old car, we don't live in the burbs, we live in a high crime rated city, we don't buy name brand clothes unless they are on sale, we live paycheck to paycheck, my son is somewhat special needs, he isn't diagnosed with anything, but does need special attention if that makes sense.

Sometimes I feel judged because I don't live in the burbs in a perfect beautiful big house with a pool, and perfect this and perfect that.
ThreeInAZ is offline   Reply With Quote
Old 10-04-2006, 04:39 PM   #5
Default  
LeXi'SmOm
Guest
 
Posts: n/a
Latest Blog Entry: What a productive weekend!
Ok if you are venting about my post last week about homeschool looking better and better, let me just tell you I was scared. Crying and shaking in my boots scared, this shooting happened REALLY close to home. I came home held my kids, watched the news and cried. My girls are my life, I never new I could love someone as much as I love my 2 girls. I know that I can't protect them from everything, I wish. I come from a very small town population1200 where this sort of stuff doesn't happen so you have to realize how I feel/felt.
  Reply With Quote
Old 10-04-2006, 04:42 PM   #6
Default  
tacoma_ranch
Guest
 
Posts: n/a
Latest Blog Entry: What a productive weekend!
My Dearest CelticFaire,

I am almost in tears reading your post. It touched me to the core and how we are judged by others in this society by what we have and have not. Or how our kids behave or not, or so many other stupid things that when it all adds up don't mean a hill of beans.

I live in the country but don't go out because the NT's just remind me of how far off my DS is from NT. I think I have built my fake world that protects Hunter and I from the real one. We hide in Disney and at home. We don't go to parties, well we are never invited because we live in the middle of nowhere. I buy everyones clothes at the church thrift store in Jackson and love when DH buys me something new. I honestly can't see spending so much money on clothes that Hunter will outgrown in 5 months. I find nice clothes for home in the thrift store for me and they last forever.

Life is not always fair but it for the living and so we live each day the best we can. My dear, my prayers and thoughts go to you. We do the best we can, no more no less.

Blessings, April
  Reply With Quote
Old 10-04-2006, 04:44 PM   #7
Default  
jschrag
Newbie
 
Last Online: 11-28-2006 04:55 PM
Join Date: Aug 2006
Posts: 6
iTrader: (0)
You really need to give yourself more credit!!! I have worked with many types up special needs children, including different types of autism. My husband is an IBI therapist and almost all of his clients fall somewhere on the autism spectrum. We both agree there is nothing more taxing on a parent than a child who has some type of autism. I know you feel most people don't understand, and your right, they don't. They may see your child doing somthing less than appealing and assume you can't control your child, when the reality is this is the first time you've made a ride of longer then 2 min. without a major incident. The bottom line is you have to define parenting in a whole new way. You have to learn to enjoy the smallest of victories, and I'm sorry to say, you have to have a VERY thick skin, because there is always going to be someone who will say the worst thing possible to, and most likely they will do it without even knowing!!! What state do you lve in??? you may be able to get help not only for your child but for you as well. You really do need all the help you can get, even if you are a supermom, also join as many suppoort groups as you can, the more mothers you can be around who really do get it, the easier it is to put things into perspective. Please know that some people to get it, it sounds to me you are doing an awesome job and that you do everything you can that is best for YOUR child, not someone elses, and isn't that what matters???
jschrag is offline   Reply With Quote
Old 10-04-2006, 05:22 PM   #8
Default  
cru5h
Mommysavers Diva
 
Join Date: Aug 2006
Posts: 615
iTrader: (0)
I too have noticed the trend with a lot of moms on this forum. And it mirrors real life. The "bad mom vs. good mom" thing is so strong it makes me cringe. I feel like I can't be myself here because I'd have to justify it when it needs none. I've made one really awesome friend on here though, so I'm pretty happy with that. I consistently bite my tongue because there are a lot of things I enjoy about this forum, and I want to share more about myself while learning about others. What I am learning is that fear is driving a lot of moms insane. Fear of everything.

When the fact that someone did not feed their kids sugary cereal becomes the thing that person is proud of, or that they breastfed, or that they put their child in a private school, or that they got their kids into Mommy & Me classes - they've got an inferiority complex going on inside, and it's got everything to do with how a mother feels about herself both as a woman and as a mom. Don't you wish it was that easy to decide whether or not you are a "good mom" or a "bad mom"? Pick a cereal: Cheerios or Cap'n Crunch. Cherrios? Okay, you're a good mom. Here's your badge. You - you with the Cocoa Puffs, you need some work!

A lot of women feel the only good thing they ever did was have children, so everything that has to do with that child has to be perfect because it's all she feels good about. Everything is riding on what she's done right, and anything that didn't fall into the perfection category is "wrong". And I guarantee it's the only thing she'll see. She won't see that her son loves his grandpa, she'll see it as her son not loving her as much. She won't see that her daughter goes to school everyday, she'll see the part where she had to take a bus to get there.

Here's the thing though - no one's parents were ever perfect. So what exactly are they trying for? My mom was an alcoholic for much of my childhood, but she actually recovered in time to give me a decent teenagehood. I don't look back and wish that away. It was watching her get through it that made me see what strength and perseverance was. My mom never hid her human side from me, and that's something I respect more than whether or not I had breastmilk or formula. Do moms REALLY think their kids are going to look back and thank them for a) breastmilk, b) the Mommy and Me classes, c) the unsugared cereal, and d) Gymboree brand clothing? Get. real. What I look back at, and I assume every person eventually does are the important things. If you want to base your mothering on trivial BS, enjoy the headaches. In the long run - NO ONE WILL GIVE A CRAP, not your kids, not your husband, not you.

I think you're on the right track to maintaining a healthy image of yourself in realizing what's REALLY important. It's the connections we make with people that count. Everything else is a distraction. Will your kids remember that you supported their school via fundraisers? No, but they'll remember the way you were always frustrated. They won't know that the frustration came from trying to keep up with your own standards of perfection, but they'll know you were never content with yourself.
cru5h is offline   Reply With Quote
Old 10-04-2006, 05:45 PM   #9
Default  
goodnightmoon
Mommysavers Goddess
 
Join Date: Jul 2006
Location: VA
Posts: 1,725
iTrader: (0)
deleted because after re-reading it, I sound too whiney.

*hanging head in shame*
__________________
He who passively accepts evil is as much involved in it as he who helps to perpetrate it. He who accepts evil without protesting against it is really cooperating with it----Martin Luther King, Jr.
goodnightmoon is offline   Reply With Quote
Old 10-04-2006, 05:53 PM   #10
Default  
ThreeInAZ
Senior Mommysavers Member
 
ThreeInAZ's Avatar
 
Last Online: 12-11-2006 10:23 PM
Join Date: Sep 2006
Location: Arizona
Posts: 159
iTrader: (0)
Quote:
Originally Posted by cru5h
Pick a cereal: Cheerios or Cap'n Crunch. Cherrios? Okay, you're a good mom. Here's your badge. You - you with the Cocoa Puffs, you need some work!
I better start getting some counseling, because I am the mom with Cocoa Puffs. Sorry I had to smile when I read that.
ThreeInAZ is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off


Members






Sponsors

Mommysavers Channel

Advertisement

All times are GMT -5. The time now is 11:45 AM.


Powered by vBulletin® Version 3.8.1
Copyright ©2000 - 2009, Jelsoft Enterprises Ltd.
SEO by vBSEO 3.0.0