Sensory integration with apraxia

BRIANNE161 · **Sensory integration with apraxia**

Does anyone else have a child with both of these? I am having a hard time getting any helpful info! Can only find it for one or the other! What if your kid has both are you just on your own?!?

desertmom · 06-21-2008, 01:29 AM

My son has SID, but not Apraxia.

I wonder if this may be of any help:
Apraxia-KIDS (a program of The Childhood Apraxia of Speech Association) - Apraxia-KIDS

What type of info are you looking for? Why is it important that you find info on both together?

I've also got to find it hard to believe that yours is one in a million, as so many kids have SID and it happens to be a co-symptom of so many other things we deal with. Therefore, I wouldn't be surprised at all if some of our other members are indeed dealing w/it as you are.

BRIANNE161 · 06-21-2008, 04:44 PM

Thanks for the reply. It's important for me to get info for them together bacause they feed off of each other. He can't tell me what helps therapy wise. What he's feeling or even if he understands simple instructions. The apraxia makes the DSI about 100 times more difficult to deal with. The combination is almost like a new disability on it's own. It probably does'nt help that he has such extreme sensory issues.

Carly · **Apraxia and Sensory Integration Dysfunction**

Brianna,

Yes, my child has both. He was disagnosed with Apraxia a couple of months ago by a speech pathologist and was just diagnosed with Sensory Integration Dysfunction by an occupational therapist yesterday the speech therapist had a "hunch" he had SI issues as well). I was actually quite relieved and am anxious to get going on his OT. For my son, I was told they go hand-in-hand.

How was your child diagnosed? Are the professionals who diagnosed it advising your child go through treatment?

BRIANNE161 · 06-30-2008, 01:56 PM

My son has been going through treatment since his diagnosis. They actually have him doing hippotherapy since he is petrified of dr office like settings. Please put your child in speech and OT.For your sanity and his!I felt so alone and like I was a bad parent. Everyone told me he acted out because I spoiled him and babied him. It took almost a year for doctors to finally figure it out but he is sooo much better! Feel free to contact me if you have questions or just want to talk. I've been dealing with this for about 6 months and there really are not alot of studies or info. Gotta go we are in the midst of a meltdown!

desertmom · 06-30-2008, 08:58 PM

Quote:

Originally Posted by BRIANNE161

I felt so alone and like I was a bad parent. Everyone told me he acted out because I spoiled him and babied him.

This comment really gets to my deepest nerve. I too, felt so alone - still do in many cases, but I've met other moms who have children w/the same dx, but different issues. I feel left out because while my child isn't as severe as theirs, he still has issues, so, so do we!

But what hits me deeply is that people think you spoiled him. I was told the same by my parents (who were the last I'd listen to) and his preschool teacher, who should have known better, as her job was to teach special needs kids! Can you imagine how worse off our children would have been if we hadn't done what we had??

Grrr.

Carly · 07-01-2008, 11:16 AM

He is starting OT along with ST - it's just a matter of finding an OT spot available. I love it when someone tells you your child needs specific treatment right now, but, oh, there's nothing available and we don't know when. In the meantime, I'm doing my own exercises with him that seem to be working.

I never got the feeling from others that I was spoiling him although I'm sure that's what alot of people thought/think. I do have other parents ask me how old he is (it doesn't help that he's tall for his age - makes him look alot older than he is and I think that magnifies that something's "wrong"). I have yet to explain to them what he has as these are parents I'll probably never see again (i.e. park). When he starts preschool, of course I'll have to inform the teachers there.

I am just wondering why. And not just him, but I wonder why more and more children are being diagnosed with apraxia and/or sensory integration dysfunction. If he ever gets a therapy session scheduled, I'll be sure to ask.

BRIANNE161 · 07-02-2008, 12:10 PM

The first question I asked his therapist was"what causes this ,and why is it so prevelant now?" She told me they have no Idea what causes it. She said the reason we are seeing so many kids with these symptoms is that they are properly being diagnoised. Where in the past they just got put in special education or called trouble makers. No one even attempted to get to the root of the problem.I am so glad times have changed. If you get a different answer please share it though.As no one seems to know very much.Also There is a book for explaining it to teachers. I think it is called "questions teachers ask". Explaining it can be difficult. They look"normal". People will ask my son what his name is or how he is all the time. Hd just looks at them. I just tell people he's not being rude he has sensory integration and he does'nt understand you. Autisim has brought alot of light to special needs kids that look "normal'. So that answer eems to suffice. If I don't feel like answering or explaining I don't. I'm a advocate for my child. I am not her to teach the world about DSI. If I was I would be exausted because no one knows about it. Stay on top of the therapy though. Don't let anyone make you feel like you are annoying them. Your child needs you to speak for them.My husband always says "where would he be if we were'nt his parents. I shrudder at the thought. It's hard but he is so kind hearted and has such a spirit I would'nt trade him for some "normal" kid !! Those are the things that get me out of bed for the bushings,therapies and such! Stay strong and do the best you can!

BRIANNE161 · 07-02-2008, 12:14 PM

Quote:

Originally Posted by desertmom

This comment really gets to my deepest nerve. I too, felt so alone - still do in many cases, but I've met other moms who have children w/the same dx, but different issues. I feel left out because while my child isn't as severe as theirs, he still has issues, so, so do we!

But what hits me deeply is that people think you spoiled him. I was told the same by my parents (who were the last I'd listen to) and his preschool teacher, who should have known better, as her job was to teach special needs kids! Can you imagine how worse off our children would have been if we hadn't done what we had??

Grrr.

Sometimes the most educated people are the most ignorant. I had a very renounded child neurologist tell me It was'nt him it was me. I needed some parenting classes. He then had the nerve to cahrge me a $40 co-pay. That was the last bill we sent out that month!!

jdawn_76 · 08-06-2008, 11:06 PM

What is sensory integration? My ds was dx with apraxia, but I do not know what si is.